BUILDING THE PATH TO EQUITABLE GENETICS AND GENOMICS CARE FOR INDIGENOUS PATIENTS
WEDNESDAY, MARCH 19, 2025 7:00PM
Presented by Faculty of Social Science and Humanities in Association with Faculty of Health Sciences & Carpenters Union, unit 397
FREE Event *Tickets Required
There are broad concerns that those with the greatest needs will benefit the least from advances in genetics and genomics. Furthermore, Indigenous patients and communities may hesitate to become involved in research and genetic healthcare that involves genetic/genomic sequencing because of concerns that resulting data will be misused. However, Indigenous involvement and on-going Indigenous governance of data has the potential to change the trajectory, improving access to diagnosis for Indigenous patients with genetic conditions.
Dr. Arbour will speak to the concepts of the ‘Continuous Conversation’, DNA on Loan, and the Global Indigenous Data Alliance CARE Principles, utilizing examples from her thirty-year career of carrying out genetic/genomic research with First Nations and Inuit communities of Canada, including that of her most recent project The Silent Genomes Project.
Recommended Age: 14+
Age Restriction: 5
Presented by Faculty of Social Science and Humanities in Association with Faculty of Health Sciences & Carpenters Union, unit 397
FREE Event *Tickets Required
There are broad concerns that those with the greatest needs will benefit the least from advances in genetics and genomics. Furthermore, Indigenous patients and communities may hesitate to become involved in research and genetic healthcare that involves genetic/genomic sequencing because of concerns that resulting data will be misused. However, Indigenous involvement and on-going Indigenous governance of data has the potential to change the trajectory, improving access to diagnosis for Indigenous patients with genetic conditions.
Dr. Arbour will speak to the concepts of the ‘Continuous Conversation’, DNA on Loan, and the Global Indigenous Data Alliance CARE Principles, utilizing examples from her thirty-year career of carrying out genetic/genomic research with First Nations and Inuit communities of Canada, including that of her most recent project The Silent Genomes Project.
Recommended Age: 14+
Age Restriction: 5
BIO - DR. LAURA ARBOUR
Dr. Laura Arbour is a Professor in the Department of Medical Genetics at the University of British Columbia situated at the Island Medical Program in Victoria BC. Trained as both pediatrician and clinical geneticist (McGill University) she has been addressing the genetic determinants of health with Indigenous populations for nearly 30 years. Through her UBC Community Genetics Research Program she tackles rare, single gene disorders (Long QT syndrome), and the genetics of more complex conditions (congenital anomalies, infant mortality, primary biliary cholangitis, cerebral aneurysm) affecting Indigenous people. Her clinical practice in Victoria BC and various outreach sites across BC involves rare genetic disease diagnosis with a focus on cardiogenetics. Her research has been continuously funded through the Canadian Institutes of Health Research and others since 2004.